Seeing someone with Marfan's older than me. . . ..

http://jrmarfan58.com/index.html I still have yet to meet anyone with Marfans other than myself. Reading Jon's website has opened my eyes to what a life with Marfan's can be. I have been through struggles but have yet to deal with the Aortic Dissection . Thinking about one day not being able to work and having to be on SSD is a scary thought, especially because my life has just started.